Hi,
Thanks for sharing your story. It’s really brave what you are doing and I guess it must be really hard for you.
I work for a charity called The Icarus Trust which would offer you help if you think that would be useful. We have people you could talk with and that might help you to answer some of your questions.
You can contact Icarus Trust on help@icarustrust.org or visit our website http://www.icarustrust.org
Good luck to you.