Hi mate, I just read your post and I’m so sorry you’re going through such a tough time. I personally have no experience with similar things but the last paragraph you wrote saying you feel like you have no support is somethjng that every person on this forum shares in common.
With your situation, I don’t think there’s many people here who can give you solid medical advice, however, if you are unhappy with the way you’re being treated then my advice would be to try and find a medical professional separately to the people you are dealing with and ask a second opinion. I don’t know what country you are from but in the UK there are things like the citizens advice bureau where you can turn for advice on where to turn for anything so hopefully you can find something similar.
Sorry I can’t be more help but no matter what, if you feel let down, or not listened too, do not stop trying to find someone who will listen.
Good luck and we are always here if you need to talk