Hi Mavis, and Blueshoes,
There is someone you can talk to who will provide the support you need to help you with fighting your corner. The Icarus Trust has a collection of amazing Family Friends who provide and support and signposting service (free of charge) to help families who are in need. You can contact them on info@icarustrust.org or go to their website at http://www.icarustrust.org.
I hope this is something to help both of you.