Hi Barbara
So I am 3 years in from losing my husband to this dreadful disease and if I’m honest I still struggle with my thoughts on a daily basis. What I do find helpful is reading the posts on here. I am not mad (although at times back then I was close to it). I am not a bad, uncaring person. I truly believe I tried everything I could to help this lovely man.
Reading your words though, I am still angry at my husbands GP. He did not help in any way. If he could have explained the condition in the way you have I an sure I would have done things differently. He could at least advised me of people to speak to.
I am trying, mostly successfully, to train my brain that it wasn’t my fault and there wasn’t any more I could have done.
I am getting on with my life as best I can. But having this forum to come back to for reassurance really does help.
Apologies if this comes across as a pity party for one. It’s not meant to. But as most of you will appreciate, it’s not a topic I can freely talk about with friends and relatives.