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January 3, 2023 at 9:18 am #32292researcher_mattParticipant
Hi,
My name is Matt. I am a researcher from Lancaster University working on a project, funded by the National Institute for health and care Research (NIHR), that aims to understand and improve online peer support forums.
As part of this project, we hope to look at how Adfam works as a support community. In the first instance, we want to examine the interactions between people in posts and threads in the forum to see what kinds of issues are raised and how other people respond to them. We will then invite users from Adfam to volunteer to take part in an online survey, and/or a one-to-one interviews so you can tell us more about why you use forums, and what you think they offer. We will offer online shopping vouchers in exchange for your time and participation.
I should stress that all data will be kept anonymous. Any forum data collected will be associated with a random PIN and will not be traceable back to you in any way (we won’t even store usernames). We have had discussions with Adfam about potential privacy issues. We want to assure people that we do not want to invade people’s privacy or make anyone feel like they are being watched online. Our intent is to gather insights that will help improve online forums for people seeking support for mental health related issues.
If you would like to learn more about the study, please visit the iPOF (Improving Peer Online Forums) website (https://www.lancaster.ac.uk/health-and-medicine/research/spectrum/research/ipof/). If you have any questions about the study, and/or would like to register your interest in participating in an online survey or a one-to-one interview please email ipof@lancaster.ac.uk.
Matt
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February 9, 2023 at 10:44 am #32421dave-itcParticipant
Hi Matt,
<p style=”text-align: left;”>Online forums are a bit outdated. FaceBook is easier to use and navigate, here are some of the ones we find helpful.</p>
<p style=”text-align: left;”>https://www.alternat-i-ves.org/pages/useful-websites.html#FB</p>
<p style=”text-align: left;”>If you want to study something a bit more interesting check out these excellent P2P Zoom groups.</p>
https://www.alternat-i-ves.org/pages/calendar.html
<p style=”text-align: left;”>We also run our own meeting twice a week and help people globally from our front room in Brum, everyone is welcome. We are volunteers but the UK is unable to progress out of the 1930s so we get better training in the USA and Australia.</p>
Happy to help if we can be of assistance.Dave and Tina
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February 9, 2023 at 10:44 am #32422dave-itcParticipant
Hi Matt,
<p style=”text-align: left;”>Online forums are a bit outdated. FaceBook is easier to use and navigate, here are some of the ones we find helpful.</p>
<p style=”text-align: left;”>https://www.alternat-i-ves.org/pages/useful-websites.html#FB</p>
<p style=”text-align: left;”>If you want to study something a bit more interesting check out these excellent P2P Zoom groups.</p>
https://www.alternat-i-ves.org/pages/calendar.html
<p style=”text-align: left;”>We also run our own meeting twice a week and help people globally from our front room in Brum, everyone is welcome. We are volunteers but the UK is unable to progress out of the 1930s so we get better training in the USA and Australia.</p>
Happy to help if we can be of assistance.Dave and Tina
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