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I feel I have made such a mess of things and I was doing so well.Long story short I have had huge problems to deal with at home and stupidly I used codeine yto get through it. I put my script in early to try and get some more,and the GP has refused to fill it.So I now have no codeine and am a week away from getting any. are the worst
I know how bad the withdrawals will be as I have been there so many times before.To say I am feeling dread is a massive understatement.
Of course this could all be for the best,at least I am telling myself that.
I have plenty of immodium and Sominex to help me sleep.The restless legs are the worse so hopefully the Sominex will get me through.Wish me luck,as I am going to need it.I just keep telling myself that this time next week the worst will be over.
Well done to you,I am so glad you can see a glimmer of light now.Every positive story I read gets me through the next few hours.
I am still managing to take just the 3 at bedtime to keep the legs still,but I am feeling no improvement at all during the day (Yet) I am managing the nausea and diarrhea with OTC stuff ,but the lethargy and the inabilityto do anything more than is strictly neccesary is still alive and kicking.My MG and my Lupus are both having a bit/lot of a flare, so its probably the cause,in which case it will pass eventually.
Keep up the good work and the positive posts,these really do help.
My GPs only/best advice was to speak to my Neurologist as this is the best person to deal with any additional / changes to my medication
This is quite frankly a bit of a joke as due to Covid most appts in this clinic are either cancelled or delayed
F to F appts are returning slowly but quite rightly most resources are going to new patients
Old crocks like me are mostly left to get on with it
I am hanging on in there but just cannot yet deal with the thought of dealing with cutting anything further yet.
I have had a pretty bad few days health wise,and I have a lot of pain but its an uphill struggle not to take the pills,as I know they will work ! I have an appointment next week with my Lupus Dr and I will discuss with her,but from past experience she will advise Codeine !
How are youy ? are you doing OK ?
I am so pleased for you as its a step on your journey taken.The most important step at that .
Re Kemadrin
I have just spoken to my GP about the possibility of this med for the restlessness /twitching,but it is contraindicated in MG,so not an option for me.After I had hung up I shed a little tear. More frustration than I think.
I did not mention the Codeine.I think must be because, subconciously I am not ready for my codeine supply to be cut off by anyone but me !
Thanks for the advice anyway !
Re Imodium
I have just read an article on line which says that it would take between 50 and 300 Imodium to give a single “High” (Whatever that may mean )
I paid £3.65 in Booits yesterday for 6,so I think its fair to say I could not afford it at that kind of dose !
However ,its good to keep these things in mind
Re Imodium… My neuro Consultant told me that the amount of Imodium needed to replicate the effects of opiates is huge.I guess “Huge”is open to interpretation but as the Imodium instant s only have 6 doses in ,I think I am OK
I actually have some of those as I used them for all three of my joint replacements (I am bionic woman !! )
The trouble is ,I am jerking around so much that I would have to tape the packs to my legs. I am taking 3 pills at bedtime and this is helping hugely .Its just about enough to keep the worst of the jerking damped down.I have tried CT several times and it bis always the restless legs that cause me to fail,so this time I am mitigating against it. I have Myasthenia Gravis so my need for sleep is huge.I realise this sounds like an excuse !
If I keep my mind occupied I can just about get through the day without any pills,
Each hour is one nearer recovery for us all
I do have a tablet cutter so that could work
Right now though getting through each hour is all I can think of
If it wasn’t for the RLS I would go CT as having the pills in the house takes massive self control and right now I do feel that even the slightest outside stress would see me back to the beginning
I know from past experience (s) that the RLS is the biggest issue for me
I have given in so many times because of the whole restless legs/whole body thing I swear my eyelashes jerk about
I have a weighted blanket which does help but of course it’s far too hot right now to get under it
I have put a bolster on the bottom of the bed and when the legs get going I push hard with my feet against it
This helps for a few seconds !!
I remember one of my failed attempts at quitting I wok my self up
I was sat up rocking backwards and forwards like a toddler !!
If anyone finds anything at all that helps for even a few seconds please let me know
Stay strong tomorrow is another day
Hi CaseyJ
I was going to say you are lucky to avoid the whole twitch thing,but of course no one here is lucky are they ? It is the one single thing that has caused me to fail time after time.I can cope with the whole bowel/nausea thing but the twitch/jerking is truly terrible.
Because I know how badly it affects me, I have taken steps to try and control it thias time around and so far it seems to be working.
I can just about cope with it throught the day but I am taking 3, pills at bed time.I have no idea how I will make the step from 3 to 0, but I guess I shall worry about that when the time comes.
The Imodium works very quickly. Good luck and stay strong.
To CaseyJ. Immodium for the bowel issues and any travel sick pills for the nausea are my crutches at the moment.The restless limbs are the worse,I swear even my eyelids are joining in !
Its reading about the success stories that keeps us going.Eventually it will be us,until then we have to keep putting one foot in front of the other ,
You are so right about this space being the thing that helps us get through.
I have been to day 3 cold turkey so many times ,this time I know that its the legs/arms/whole body restlessness that will cause me to fail.I am taking just enough to allow me some sleep.I tried 2 pills at bedtime but I now accept it needs to be 3. I shall worry about giving that dose up when I feel I have the strength.Stay strong.
I am so pleased for you.Its post like yours that keep us all going.
I am on the path but have a fair way to go,but I am determined to get there.
Have a wonderful codeine free life,you so deserve it.Well done,in bucket loads.
I am cheating in some respects ad I am taking 3 pills at bed time and this just allows me some sleepi am waiting for chemist to open for Imodium lol
Stay strong every hour is one nearer to this being over